There are not many things that I truly hate. I can usually always find something good…at
least good in the way that I look at things which usually involves making
someone feel uncomfortable… in anything.
That being said I odviously hate cancer.
A side hatred of the overarching cancer hatred is the hatred of waiting
for the next thing.
For those of you that are lost, let me splain. Cole had been taking part in a treatment that
consisted of him taking pills every day that did not seem to have any sort of
side effects. Unfortunately they also did not seem to have
any sort of cancer fighting effect. The
spots that were there are still there, and he has a new spot in his right
leg. So now we are back into the hair
falling out, feeling like shit, upset stomach, sleepless nights (and the side
effects on Cole suck too) chemotherapy treatments that we all love so dearly.
So tomorrow, well since it is well past one am today I guess,
Cole has to go in to the OR and get a port put in (I do hope they put it on his
right side for ironicality). A port is
just like the central line that he used to have, but the access point to this
line lives under the skin. Good for us
because there is no maintenance and no water restrictions on Cole, who incidentally,
has become quite the swimmer.
This port installation procedure is a fairly minor
(relatively speaking) procedure, and I am sure that Doc Sullivan will have no
problems. Of course my wildly overactive
imagination has gone through all of the shittiest possibilities and has decided
to share them with the part of my brain that deals with me going to sleep. I have been sitting here imagining having to
write his obituary (which I have done more times that I care to admit), imagine
the doctor coming into the waiting room to apologize because there was nothing
they could do. Super fun times.
Switching gears a little bit….that is what I do and how I roll. Deal with it…., I had a telephone meeting
with a nurse practitioner in advance of the surgery….at least that is what he
said that it was. Given his almost
comically (without the almost) clichéd accent, and the fact that he kept
saying, “According to computer” (now put that line into an over the top Russian
accent that sounds like a guy making fun of Russian accents, and you will see
the comedy), and the fact that he is from Kaiser, which is where Cole was born,
and the fact that he kept asking about Elisa’s pregnancy, and the fact that
2+2=4, I have decided that he is a sleeper agent from the former Soviet Union
that was accidently activated when I ordered a pizza online the other day.
This new therapy will require Cole to spend 4 hours per day,
M-F, one week out of 3 (sounds like the worst Reserves commercial ever) up at
sunny UCSF (when the new one opens I wonder if the proximity to the ball park
will result in more games attended.) for the foreseeable future. Word around the campfire is that we are of
the mindset of long term systemic treatment instead of maintenance.
Looking for ideas on things to do while we are in. The therapy is all done outpatient so we can’t
bring the big bag of stuff (big bag of stuff means the D&D stuff, Wii, Dr.
Pepper, Pringles, and Goldfish).
Odviouslylenss we will do some world domination plotting (Will send you
the link to our World Domination Kickstarter.
We only have to raise 2345w3sfw34545342 more dollars), but we need some
other ideas of what to do that does not equal video games.
Think I will say bye for now, but please remember to give me
ideas that are not the normal ideas (do a puzzle, paint a picture, get some
stank). Think outside the box. I look forward to your comments, but please
be advised that all comments must be written between the hours of 12am-4am PST
(or is it PTSD) or written after 12-14 beers have been consumed within the
previous 1 minute. Please raise your glasses
to Cole, author of a beloved series of children’s book starring a shy palm tree
named Guido.
Fabric crayons for Tshirts and pillows, Yoga, learn to play guitar, "Mad Gab" game. I'll keep thinking... Lori
ReplyDelete