5-16-12

He is only 7.  Let me tell you two things that suck.

The first is that Cole asked a pointed question whose answer could only be fully given to someone with knowledge of chaca chaca boom boom (chaca chaca boom boom is the grown up word for making the beast with two backs).  Normally I would just use my powers of distraction and avoidance; however, I caught my self for one of those moments.  You know those moments that I am talking about.  It is that moment that takes, in reality, a fraction of a second but in your brain takes hours.  If it were a movie, you would have a conversation with your two selves in order to make the needed decision.  You see while I know that I will have to have the conversation with him that involves where to stick it, that conversation is not supposed to happen until after he and his friends have had the chance to look at an entirely inappropriate amount of porn.  What gave me pause however, was the fact that I cannot answer one simple question.  What if I don’t get a chance to have that conversation at all?  What if we lose?  WTF?

The second thing that sucks is this.  If you know that someone is going to hit you in the stomach with a 2X4, you can kind of prepare for it.  You can do your best to make sure that you take the hit in such a way that you protect, as much as possible, your vital organs.  Every time that my phone rings and I see that it is Kaiser, I have that moment before I answer the phone to get myself ready to take the hit.  I am used to it, and have gotten to the point where they can’t hurt me anymore.  But now imagine that out of nowhere someone randomly takes a shot at your stomach with a 2X4.  That would suck, huh?  I, randomly, get hit by that 2X4.  It might be something that I see (the outline of his tubes), something that happens (His legs start to hurt)……, or something that is said (like when I was talking to Oliver and I said that Cole is pretty cool and that when I grow up I want to be just like him.  To which Cole responded, “I don’t think you want to be like me.  For one, I have cancer.).  He is only 7.    

Well, please raise your glasses and toast Cole, the next Jim Duggan. 

Today

Today is kind of a random thought day, no real updates.  I should have something newsworthy tomorrow.

Not sure which is the more appropriate (although ridiculous) reference, so I will throw both down.

Remember when they guys got back from Antarctica and Sheldon ran back to Texas?  Well the universe keeps treating me like Leonard.  I can’t catch a break.

Or…

You know what I am afraid of? Quicksand.  You know you are going along and then something happens, and then another thing happens, and another, and another.  An no matter what you do to try and get out, it seems like whatever you do just causes you to sink further in.

You want to know something scary, I can tell the difference between 10 year old and 12 year old GlenMorange Scotch (even if I can’t spell it, or afford either).

I feel like I am supposed to love the Olympics, and I truly used to.  However, they have not even started yet and I already am tired of them.

It is funny the effect time and distance have on a relationship with another person.  What is even more interesting is how time and distance from a third party can affect the relationship of the principals.

I wish that my education had a greater amount of arts.

America’s Got Talent scares me.  Not because of the sheer stupidity of it, or that Howard Stern and Howie Mandel have control over other people’s lives.  What really scares me is the fact that they sell out the theater. 

I wish I owned a tux.  I wish I needed to.

I wish Cole did not have Cancer.  All the rest is just bullshit.

5o-5o-12o

First, happy Cinco De Mayo.  Go have some French Fries with hot sauce.

So we have a bunch of stuff to catch up on so I am going to try and limit my random rantings except to say that I have put in a call to Tony and hugs can be expected.  Don’t push me.  Yes, that much.

So when we last spoke I told you about how we were going to have to do the MIBG therapy and that we were meeting with UCSF.  Well we had the meeting on Wednesday, and the universe decided that was a good day to show up and say hi.  Please allow me to elaborate.

** ok so I know I said no rants, and I almost meant it.  I wonder if people who smoke crack have a moment of clarity right before puffing and think to themselves, “I know this sucks and it is destroying my soul,” and then they suck that shit down.  I have a TV show with which I have a similar relationship.  Poor Dev**

We had appointments for Oliver and Logan for check ups.  Cole had a therapy.  Oliver received his first shots.  Logan has either foot and mouth or mad cow disease.  Cole started feeling crappy at the meeting and the whole house, with me excepted for the moment at least, has descended into sickness.  Cole, of course, spiked a fever and we ended up in the ER until midnight (an hour of which was us sitting in the pharmacy waiting on medications that we ended up not taking anyway).  Good day.  At least I was paid for my time, thanks to the generous people at WEMED.

At the meeting, we learned more about the MIBG therapy and I will tell you that it truly sucks.  We, as the caregivers, can only spend about 30 minutes per day at Cole’s bedside due to his becoming highly radioactive.  There will be a small mirror that will allow us to see him, and for him to see us.  Fortunately Cole is all about the adventure so the idea of a mirror is awesome to him.  For me it is another sucky thing to have to put my son through.  Fortunately I have a great support system, and the AZ Bakers are being mobilized and spreadsheeted.

**Another randomization.  Watching the NBA playoffs, I can’t help but find that the two teams that I want to see win are the Lakers and the Celtics.  This bothers me because I kind of hate these two teams.  The Lakers have one of the best players ever, but he is a total ass.  They have a lazy punk for a center who, when he shows up, is unstoppable, and they have a truly crazy person.  The Celtics have one of the best assist men that I have ever seen play.  They have one of the best pure shooters that I have ever seen play.  But they have Kevin Garnett.  I want so bad to hate both of these teams, and I want to root for the Grizzles or the Thunder, but I can’t.**

It looks like we are a go for UCSF on or about June 14^th.  He will probably check in to his luxury suite on the 13^th, and then on the 14^th, he will obtain his super powers.  If you want to know more about  it, then you will just have to read the comic (which will be on sale soon).

Before I go, I want to make two announcements.  First off, JULIA IS ENGAGED TO BE MARRIED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! TO A BOY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Second, Julia’s...nay, my new soon to be brother in law is already stepping up to the plate.  He is giving a free seminar(?) or class(?) (not sure the exact format) about internet security.  Now, please understand that I am not trying to make fun of what he does.  I just truly don’t understand it.  I know that he is something similar to Robert Redford from Sneakers (Don’t look, listen) and that if you mess with his new family, he will hack yo ass….er something.  No, really I don’t understand it.  It has something nerdy to do with computers, and believe it or not, I am the cool one in the family.

In all seriousness (no really I promise this time) check out the link for what he is doing.  If you  follow his instructions and make the donation to Cole through this blog and put in the magic password, you will be able to receive a piece of his expertise.  http://www.securityaegis.com/hacking-cancer-please-spread-the-word/

For now please raise your glasses and toast Cole, deadly from beyond the arc.