This blog started out as a chronicle of my son's fight with neuroblastoma cancer. Fortunately he has been doing so well that there has been less and less to chronicle regarding this disease. I have decided to expand this blog such that it will cover all of my family. Don't worry though, the information passed will still be filtered by my rather large, impressive, and completely insane brain. So grab some pancakes, and buckle up.

Thursday, June 11, 2015


Math time.  Cole recently played 4 baseball games in 4 days.  During those 4 games his batting average was .000, but his on base percentage was .900.  That has to be a record.

Business time.  In a couple of weeks, Baker BBQ sauce will make its official California debut.  If you want to place an order, email me.  If you try to order by commenting on this post, you will likely starve (see Admission time infra).

Awesome kid time.  Ollie is in full blown awesome 3 year old world (full blown awesome 3 year old world is the clinical definition of insanity).  He is well aware of his penis.  He knows that his butt, and the things that come out if it, are both funny and torment his mother.  His command of the English language makes me fall on the floor.

Admission time.  Today I was checking to make sure the interweb was still working by going to my blog’s website.  Did you know that the comments were activated and that I can look at them and see what people have said?  You did?  Well you don’t need to brag about it, because I did not.  So if you commented and I did not respond, please accept my (I would say humble but I don’t think that anyone would buy that) apologies.  In the future I will strive to intentionally not respond to comments so that you can rest assured that my not responding was not due to some oversight.  There.  I feel much better now.

Medical Time.  Cole had been doing a treatment that involved chemo (Chemo is kind of like Saved by the Bell.  You got me through some tough times in my life, but you basically suck the soul.) and some experimental liquid medicine whose properties are kind of magical and if you try and figure out what is in it you run the risk of being banished to the ice penal (heheh I said penal) colony on Zortof, the 3rd moon of the planet Zoroastical.  The treatments were successful in the same way that most of the treatments have been successful.  Cole is not dead.  His cancer has not spread, and Cole could tolerate the med. (read the last two sentences out loud for an added experience).  This is the same treatment that I last described way back in November.  The chemo portion caused his hair to fall out, and caused him to miss one week of school every three weeks (and still got an award for reading more words that all the other kids in the world combined).  We did like 15 or 16 rounds of this treatment.  The result?  A tie.  I know a tie is a win in this game, but I want a F$#@#$$ing full on hoist the trophy win.  Now we are on to a new treatment.  This one, assuming it works, is totes awesome.  The therapy is immuno based therapy.  In this instance the medicine goes in and provides a pep talk similar to the one I gave to the soccer team (see other posts either supra or infra depending on how your browser organizes the blog) to the white blood cells.  Of course the result is the final determination of the awesomeness, or lack thereof, but this treatment already has a high level of awesome because there is no chemo component to it.  That means that if you get a rare look at Cole’s head, sans hat, you will see a darkening that is not because the hat is totally gross and dirty (which it is), but because he is getting fuzzy up there.  Imaging this week after our first full cycle of this treatment.  Stay tuned.

Admission time.  Again.  I am not wearing pants.

Question of the day.  Why is it ok for girls to wear spandex type pants around town but when I do it, suddenly I am that weird guy who makes people uncomfortable?  That is cultural gender discrimination and I will not stand for it.

Drink Time.  Raise your glasses and drink to Cole, who may or may not join the Blue Man Group as an intern this summer.

Thursday, November 13, 2014

Beware of Greeks and Naked Messy Dudes

Last night Norma Rae was off rabble rousing, so the boys and I had a good old fashioned boys’ night.  A fort was made.  A fort was destroyed.  A fort was rebuilt.  A fort was redestroyed.  A fort was rerebuilt.  A fort was reredestroyed.  A fight ensued.  Peace was installed.  Milk was consumed.  A fort was abandoned to the savages.  A fuse was blown.  A child cooked a protein.  Things were deep fried in oil.  Condiments were overused.  Messes were made.  A good night was had by all.

Then reality sunk in. Cole started feeling shitty (In case you have not been keeping track, this is a treatment week).  As it was early and I was too tired….I mean since I value art so much…. I let the boys tear into the play dough. 

Logan made a dude.  I know it was a dude because it had some stuff that only has a dude has.  And it had butt cheeks too. (here it is appropriate to say that boys rule.  Girls drool). 

Oliver made a mess.

Cole made a little figure, and a toilet.  The figure had food (real food mind you) in the mouth and there was food in the toilet.  I asked him what he made and this is what he told me, “Well Dad, when the Greeks would get sick or hurt, they would make a figure that showed the sickness or hurt.  They would put it in their house and the hurt would go away.”  Umm.  Ok, little man you are nine.  You have not (yet) graduated from Stanford so you should not have such sophisticated thoughts.  But you do, and you are awesome. #buybakingsoda

Next imaging is week of Thanksgiving.  I think that someone should buy me (by me of course I mean Cole but since he is a child I will have to go with him) some tickets to the Seattle-SF Thanksgiving game.   

Tuesday, November 4, 2014

Please come wet your toes in the pool of insanity with me

You may be wondering why my last few posts have been about the awesomeness of sports.  Well, first of all it is because sports are awesome and anyone who disagrees is a big banananananana head.  Second it is because of October. 

For those who are not sports peeps, October is the best month for sports.  Hard core basketball dudes will say I am wrong and that either March (college) or June (NBA) is the best.  Followers of fine football will be fuming, and fabricate fibs that January/February is the best.  Hockey….I just can’t seriously discuss hockey (don’t worry, they are all Canadadaaddaddaians who will cheerfully still be nice to me even though I trash their game). 

The reason October is the best is because baseball is winding down, with the ultimate culmination occurring with the World Series; football is just getting into its groove where games really start to matter; and basketball is just starting.  Every aspect of sport can be seen, experienced, cherished, blah blah blah all in one month.  It rocks.

Today’s discussion from the world of sports is the idea of excellence vs. greatness.  First some definitions.

Excellence: The grown up word for doing it the best.  People like to see excellence.  The best example of excellence is the San Antonio Spurs.  Watching them play reminds me of doing a very specific drill to learn how to run an offense.  In this drill, the offense would run its plays, or sets, or whatever it was supposed to do without any defensive players on the court.  You just worked on going to the right spots, making the right passes, getting the good shots.  Then doing it again until you can run the offense in your sleep.  That is the Spurs.  It is like the defense is not even there.  They just do their thing, and make it look easy.  That is excellence. 

Greatness: The grown up word for Legen------------(if swung that way I would totally be into to NPH)------dary.  Greatness is like porn.  Hard to define but you know it when you see it (thank you Supreme Court for helping with my analogy).  Greatness causes people to lose their minds (in the good way, not the need a lobotomy way).  The San Francisco Giants are a great example of this.  This is a baseball team that is not really all that good.  They have a few good players (for the locals who are fuming at my only referring to the better players as good, look at Mad Bum’s stats in the regular season.  Good, not great), a really good manager, and a good front office.  But something happens to them if they somehow find themselves playing in October.  They become magic.  Maybe that is what greatness really is.  When someone(s) transforms themselves, and/or performs in such a way that can only be described as magic. That is greatness.

People who strive for, and succeed at, excellence see the universe of rules that governs their world.  They know the goal.  They have a plan.  They execute the plan.  They achieve the goal, and they do it better (in whatever way better is defined within that world) than everyone else.  Excellence is doing it the right way perfectly.

People who achieve greatness look at the rules of the specific universe and gafaw (in order to truly understand a gafaw, imagine a man standing in the face of a hurricane that is throwing hot lava.  As the fit hits the shan, the man leans his head back and lets out a booming sound from deep down in the cockles of the soul.  The sound is a cross between a laugh and a threat.).  They toss the rules aside and proceed to achieve the goal in a way that no one has ever heard of before.  If excellence is doing it the right way, then greatness is creating the right way.  Most attempters of greatness go mad.  Those ones that don’t, become legends.

Which do you want to be, excellent or great?

On the day of my wedding, a certain coach for whom I have great respect (despite the fact that he broke the rule.  The one rule.  There was only one, and it was broken and only I picked up on it and I won’t tell anyone what it was except for a certain other person who played a sport for which I have absolutely no respect but he/she/it is sworn to secrecy and you can tell how important this sentence is because I am not degrading it with any CJ punctuation or any of that cuz I am lazy #youth(wow that was a cool rant that had inside rants from no less than 3 of my different worlds in which I live))()()()(j)(u)(s)(t)(b)(e)(c)(a)(u)(s)(e) wished excellence upon my marriage.  That wish always felt just a little bit off to me.  It is like wearing a shirt that is just 1/6 of a size too small.  For the most part it fits, but is just ever so slightly off.  I think that my offness stemmed from the fact that I have absolutely no desire for excellence.  Really.  I am being serious here.  If I ever end up excellent at anything, it was not intentional and I apologize.  What I want, what I desire, what I yearn for is greatness.  I have not achieved it yet….then again maybe I have.  Or maybe i’VE already gone mad.  I will let my autobiographer decide if he ever gets around to actually writing the book.

When I look at Cole and Logan (Ollie is a little t0o young for me to determine how his life is going to go.  As a general rule I like to let kids have 5-6 years of carefree happiness before I decide who they are, and who they will be), I see one kid who will undoubtedly be great, and one who will surely be excellent.  I am enjoying watching them play it out.

Fine, an update on boring medical stuff.  Cole is doing well.  Hair is funky.  Labs are good.  This week we actually have a rare week where not one single medicine is required for an entire 5 days.  Pretty cool.  Next week we start another round of treatment, but in the meantime raise your glasses and take a quick drink cuz they are watching you. (Side note: The best part of my blogging experience is letting my computer try to spell check my post.  I did not know that computers could sigh in exasperation, but come to find out they can.)

Wednesday, October 29, 2014

Torrent River of Swirling Thoughts

Number 1:
So like I was saying, everyone around here was watching it.  Everyone within 100 miles of KC was watching it.  27 other people were watching it.  If you are one of the aforementioned individuals, this post is not for you.  If you are one of the chosen from the last post, then this post is not for you (but you will appreciate it). 

Music is the only field, other than sports, where 50,000 people will go out of their minds crazy just to watch you do your job.  But here is why sports is better.  In music there is no chance of losing.  NKOTB never goes out on stage and has to worry about 98◦ out playing them.  There is no agony in watching Green Day work all year long, playing concert after concert only to lose out to JayZ.  That is not to say that music is in any way bad.  In fact anytime 50K peeps will act like maniacs because you walk around, it is cool, but still, sports wins.  Go find your sport and start playing.

Number 2:
I just started the Slow Regard of Silent Things.  I highly recommend that you read this, but you must follow Pat’s advice and neither buy it nor read it unless you are supposed to, and unless it is right.  His first two books are awesome and fantastic and super cool.  This one is simply beautiful

Number 3:
Do you like this new format?

Number 4:
I just had a great idea.  Chemo Christmas.  This is a new holiday that will be celebrated in February.  Here is how it works.  On Chemo Christmas, you celebrate the magic of western medicine’s ability to figure out that they can make stuff that will kill the bad parts faster than the good parts.  You celebrate this by giving a gift to someone who’s life has been affected by chemotherapy.  The gift does not need to be, and should not be, big or expensive.  It should just be something to say, “I am glad that because of chemotherapy you are here to receive this gift.”  The gift is not really for the patient, but for the collective intelligence and spirit of every doctor, scientist, nurse, and patient who has ever been involved in cancer research.  This new holiday will be celebrated on the first day after the tenth day of the second month of the year.

Number 5:
I have been working on a train of thought regarding the difference between excellence and greatness.  That will be in a future post.

Number 6: 
Tonight pour a drink and raise your glasses for Cole, the first of the three most awesome dudes ever.

Saturday, October 18, 2014


I have been instructed by my therapist to start blogging again.  Apparently I have been kind of an ass lately....wait....hold's coming............I am always kind of an ass (or a kind of ass, or a kind ass, or one of the asskind (a race of grammarain warrariors from the south of france).  Oh well, I am here might as well make the best of it.

Details on Cole to follow, but I would be remiss in my duties as el entrenador grande if I did not first speak to you about some sports stuff.  For those of you who are sports peeps, you already know this so feel free to jump down to the update section.  For those of you who either think sports are dumb, or refuse to let your kids play sports, keep reading.

This morning 7 4th and 5th graders stepped onto the pitch to do battle.  With no subs, this well coached group of mini-warriors fought epically for a half.  la They were like little possessed beasts.  They were flying to the ball.  At one point Cole literally.....literally...flew into an opposing player, who had at least 40 lbs on him, in an attempt to win the ball.  Their efforts paid off, and they jumped out to a 2-0 lead.  As the half wound down, the other team's best player (who will not have to pay for college) dropped a dime from 25 in the upper right corner, and then tapped in a rebound after we made an all star save.

2-2 at halftime.  As the soldiers prepared to finish the game, one comes to me and tells me that hA e has to leave.

The second half starts and we are down a man.  I gather the troops and give them the combination of St. Crispin's Day Speech, Any Given Sunday Speech, and Hooser's (for those sad sad few who don't know this one..."My team is on the field").  A great war cry erupted from the pre-pubescents, and I think that I actually saw fear in the other team's eyes.

The boys played with a fervor that I have not seen since lo these many years.  However, as the game wore on, and the attrition started to set in, the enemy was able to chip away at us.  Exhaustion.

Two goals were scored  late in the second half.  We rallied and got one back, but they were too strong, and we were missing a player, and they tacked on two more at the end.  6-3.

Now here is why this is important.  In the San Mateo AYSO U-10 league, the first five games do not count towards the tournament.  We did not win any of those games.  The last 5 do count.  Last week (a loss) was gave 6.  This week was game 7.  In case you were not paying attention, we have not won a game yet.  Also, in case you were not paying attention, we were down a man for half of the game today.

As the boys walked off the field in defeat today, almost every single one of them had tears in their eyes.  These tears were not just due to losing.  No.  They were the tears that come when you give everything you have to something, and then you give a little more, but you come up short.  Every boy today played his heart out, and I want them to hold their heads up high, but I know that they will not.  Sometimes the dagger thrust of defeat is too deep to heal in one night. So tonight as you go to bed you should know that there are 7 little men that have been wounded deeply today.  Tomorrow they will wake up, and maybe, they will take that pain and use it as a reminder to keep trying, keep fighting, keep going.  They will also know that there are 6 other people to whom they are connected, and with whom they share a bond that goes down to the very soul of their person.  That is why you play sports.

Now on to Cole (I know what you are thinking, why talk about cancer (which sucks) after talking about sport, but it must be done for a few reasons.  1) you want to know 2)Roberta would kill me if I don't and I have about 500 reasons to listen to her and c) it is a better update than the last one).  Cole has been on a new treatment that started right after the last time that we all got together and entered my brain.  It consists of some liquid medicine (which sounds chill but can literally....literally eat through a brand new quartz countertop), "normal" chemo meds ("normal" chem meds?  really, "normal"?  what does that even mean.  Well, I am glad you asked.  "normal" is the grown up word for a drug that is not experimental.), and various other otcs.

So far the treatment has been going well.  Not a victory, but not a loss.  New spots in the leg appear to have been eradicated.  All the old spots are still there, but they are not getting bigger.  In this game, ties are good.

Thursday, May 29, 2014

Poopy Poopy Poopy Pants

There are not many things that I truly hate.  I can usually always find something good…at least good in the way that I look at things which usually involves making someone feel uncomfortable… in anything.  That being said I odviously hate cancer.  A side hatred of the overarching cancer hatred is the hatred of waiting for the next thing. 

For those of you that are lost, let me splain.  Cole had been taking part in a treatment that consisted of him taking pills every day that did not seem to have any sort of side effects.    Unfortunately they also did not seem to have any sort of cancer fighting effect.  The spots that were there are still there, and he has a new spot in his right leg.  So now we are back into the hair falling out, feeling like shit, upset stomach, sleepless nights (and the side effects on Cole suck too) chemotherapy treatments that we all love so dearly.

So tomorrow, well since it is well past one am today I guess, Cole has to go in to the OR and get a port put in (I do hope they put it on his right side for ironicality).  A port is just like the central line that he used to have, but the access point to this line lives under the skin.  Good for us because there is no maintenance and no water restrictions on Cole, who incidentally, has become quite the swimmer.   

This port installation procedure is a fairly minor (relatively speaking) procedure, and I am sure that Doc Sullivan will have no problems.  Of course my wildly overactive imagination has gone through all of the shittiest possibilities and has decided to share them with the part of my brain that deals with me going to sleep.  I have been sitting here imagining having to write his obituary (which I have done more times that I care to admit), imagine the doctor coming into the waiting room to apologize because there was nothing they could do.  Super fun times. 

Switching gears a little bit….that is what I do and how I roll.  Deal with it…., I had a telephone meeting with a nurse practitioner in advance of the surgery….at least that is what he said that it was.  Given his almost comically (without the almost) clich├ęd accent, and the fact that he kept saying, “According to computer” (now put that line into an over the top Russian accent that sounds like a guy making fun of Russian accents, and you will see the comedy), and the fact that he is from Kaiser, which is where Cole was born, and the fact that he kept asking about Elisa’s pregnancy, and the fact that 2+2=4, I have decided that he is a sleeper agent from the former Soviet Union that was accidently activated when I ordered a pizza online the other day.

This new therapy will require Cole to spend 4 hours per day, M-F, one week out of 3 (sounds like the worst Reserves commercial ever) up at sunny UCSF (when the new one opens I wonder if the proximity to the ball park will result in more games attended.) for the foreseeable future.  Word around the campfire is that we are of the mindset of long term systemic treatment instead of maintenance. 

Looking for ideas on things to do while we are in.  The therapy is all done outpatient so we can’t bring the big bag of stuff (big bag of stuff means the D&D stuff, Wii, Dr. Pepper, Pringles, and Goldfish).  Odviouslylenss we will do some world domination plotting (Will send you the link to our World Domination Kickstarter.  We only have to raise 2345w3sfw34545342 more dollars), but we need some other ideas of what to do that does not equal video games.

Think I will say bye for now, but please remember to give me ideas that are not the normal ideas (do a puzzle, paint a picture, get some stank).  Think outside the box.  I look forward to your comments, but please be advised that all comments must be written between the hours of 12am-4am PST (or is it PTSD) or written after 12-14 beers have been consumed within the previous 1 minute.  Please raise your glasses to Cole, author of a beloved series of children’s book starring a shy palm tree named Guido.

Wednesday, March 19, 2014

100 is a cool number

Do you think that I look like Busta Rhymes?  Maybe just a little bit?

I was thinking about making a big deal about the fact that this is my 100st(th)(rd) post, but then I decided that the round, base 10 numbers get all the play so I am going to celebrate some lonely prime number.

You that super awesome feeling that you experienced as a kid on Christmas eve?  Lying there in bed, quivering with excitement knowing that at any moment a very large (for those of you who were kids before Coke made him fat, feel free to remember him as a small elf) possibly drunk (given the flushed cheeks) would be performing a home invasion at your house.  What you got did not really matter.  All that mattered was that you were getting stuff.  Every sound that you heard had to be Santa.  You knew that if you could only go to sleep Christmas would get here.

So this week is imaging week.  The anticipation that I feel is the exact opposite of the Christmas Eve feeling.  I kind of don’t want imaging day to come.  If it never comes, then I don’t have to have that conversation with Dr. Taggart about new spots and new treatments.  I don’t have to tell Cole that he can’t play sports this week, or that we have to start a new treatment that will involve some stupid side effects. 

This means that when you ask me how it’s going, I will say to you, “good good (don’t know why I always speakly doubly thus, but verily I doth)” but now you will know that inside I will be doing the crazy dance of crazy.  (Think Madonna, Madonna, Martha Graham, Martha Graham).

For those of you who don’t speak Jim very well, we have imaging (MRI, MIBG, CT, EIEIO) this week.  Today was MIBG injection and MRI.  Tomorrow is MIBG and CT.  This will tell us what, if any, effect this new treatment has been having.

Now on to much cooler stuff.  The best little town in America (San Bruno) is kicking off their Relay for Life Run that is coming up this April with a great community event this Saturday.  In the spirit of Batkid, two local kids will be battling an evil super villain all across the city.  The battle will be followed by a BBQ.  The whole purpose behind this event is to honor and celebrate those who have fought and won the battle against cancer.  It is also to let those that are still fighting know that they have friends and loved ones out there who are ready and willing to help. 

This event is taking place this coming Saturday.  Send me an email, comment on this blog, or facebook me if you are interested in more details.  For now; however, raise your glasses and toast Cole, superhero.