Dude, Cancer sucks. I will prove it to you.

Thursday, September 27, 2012

9-27-12

Unfortunately I flew too high and my wings melted.  I then plummeted down, and as I started to right the ship, so to speak, the waves hit me.  

On Sunday Cole was feeling crappy.  We checked his temperature and it was 312.48 Kelvin.  Called Kasier and off to the ER we went.  On Monday, the fever persisted so off to the clinic we (we herein for this sentence refers to gma and gpa) went.  On Tuesday Dr. Taggart called and said that the cultures drawn on Sunday had grown into something (presumably Canadians) and that we had to go get admitted. So............................................................................................................................................................................................................................... I got to leave my new job early, again, and take Cole to the hospital, again, and we met the president again.  We were going to stay at the Hotel Abbot, but Kaiser knew of a much better place, so we stayed with them.  Now I feel that I must stray from this otherwise completely coherent and succinct summary of what's what and wander into a rant.  Over the last 18ish months I have spent a great deal (great deal is the grown up word for way more time that you should ever have to spend in a hospital with your kid) of time at Kaiser Santa Clara hospital, 3rd Floor, and have always been treated like a VIP (VIP is the grown up word for Vociferous Idiotic Parent).  You can understand my shock and awe then when I tried to go get some water from the room where the water and fridge are only to find that they put a lock, and an electronic one at that, on the door.  Not only was I locked out, but they refused to give me the code.  I tried to explain to them that the US Government (the sweetest smelling government in the world) saw fit to bestow upon me a secret clearance but to no avail (but to no avail is kind of a strange expression. You always use it in the negative.  You never say "to avail."  Kind of like repeat.).

Despite that, we had a nice stay.  Since the Monday cultures did not grow any friends to the north, Cole was free to go.  As they were discharging him they mentioned something about how the growing of the cultures was not due to bacteria in Cole's body, but rather contamination from the tech's glove.  Really.  The strain on  my nerves, as well as my new job did not need that.

As you can tell, I had a bigge week, but we seem to have made it through.  I will try to write again sometime soon, but in the meantime please raise your glasses to Cole, crane operator.  

Wednesday, September 12, 2012

So anyway, like I was saying I haven't written in a while (4 months to be exact) and I have almost forgotten how to write such that I am sure that I will make many grammatical mistakes and some of them might even be on accident or maybe I just might throw caution to the wind and completely avoid the use of a period irregardlessly of the amount of words, ideas, thoughts, rants, plea bargains, etc that I decide to use in my seemingly senseless and random diatribe.  Ok, maybe not.

So, a ton has happened in the last few months.  I will try to be brief in my summary.  First, and foremost all the people that reside in the San Miguel Baker household are alive.  The dog is alive.  The chickens are alive.   Unfortunately I can not say the same thing for the hermit crab or the rolly polly (although in our defense, I don't think the rolly polly was ever alive while in captivity).

Logan is doing well.  He is developing a strong, and some might say destructive, addiction to Star Wars.  He has only seen IV and VI (IV and VI is the "My culture has been dead for a long time mostly because we never figured out the 0 in math" way of saying A New Hope and Return of the Jedi (A New Hope is the hard core Star Warsy (tried to work Trekkie into Star Wars but it did not really work out) way to say what most people just refer to Star Wars)))))))))))))))))))))))))(I lost track of how many I had to close so in an abundance of caution I made sure to secure my parentheticals.  The last thing you want dangling where all the world (including the Pope and your 1st grade teacher) is a parenthesis.  )()()()()()()()()()(((((((()))))))))))).  He is a senior in College now and has almost mastered reading.

Oliver is built like a baby Barkley (Charles, not Matt although I would not say no to a scholarship to USC and a top 5 draft pick).  He is about to start crawling any day now.  He loves his new babysitter, Heather.  It was strange to take him to someone other than Anna.  He is a big bucket of giggles and poop.

Cole has been doing well. (let's get the medical crap out of the way).  He went through the MIBG therapy.  It was a crazy experience and I don't wish it on anyone.  At least; however, it did not seem to do any good whatsover.  So that is good.  Now we are on a new therapy this is logistically not so bad (one week of appointments every day but no overnight stays), and of the three medications that make up this protocol, he has taken two of them before (with positive results).  He has completed one round of this, and begins his second round soon.  After round 2, we will do a bunch of imaging.  Have to remember that it is a marathon, not a sprint.  Other than that, Cole has started 2nd grade, and really enjoys it.  He is playing soccer (had his first game last week.  I was the ref.  There were some controversial calls that some of the parents took exception to so I had to go and tell them what was up.  After the game I went home and made a big stack of pancakes and felt much better).

I have to go to sleep.  I have a bigee day tomorrow.

I have decided that I want to do a fundraiser (for some good charity, just don't know which one).  The fundraiser has to include Michelle Obama and Patrick Rothfuss.  Anybody have any ideas?