Dude, Cancer sucks. I will prove it to you.

Saturday, May 5, 2012


First, happy Cinco De Mayo.  Go have some French Fries with hot sauce.

So we have a bunch of stuff to catch up on so I am going to try and limit my random rantings except to say that I have put in a call to Tony and hugs can be expected.  Don’t push me.  Yes, that much.

So when we last spoke I told you about how we were going to have to do the MIBG therapy and that we were meeting with UCSF.  Well we had the meeting on Wednesday, and the universe decided that was a good day to show up and say hi.  Please allow me to elaborate.

** ok so I know I said no rants, and I almost meant it.  I wonder if people who smoke crack have a moment of clarity right before puffing and think to themselves, “I know this sucks and it is destroying my soul,” and then they suck that shit down.  I have a TV show with which I have a similar relationship.  Poor Dev**

We had appointments for Oliver and Logan for check ups.  Cole had a therapy.  Oliver received his first shots.  Logan has either foot and mouth or mad cow disease.  Cole started feeling crappy at the meeting and the whole house, with me excepted for the moment at least, has descended into sickness.  Cole, of course, spiked a fever and we ended up in the ER until midnight (an hour of which was us sitting in the pharmacy waiting on medications that we ended up not taking anyway).  Good day.  At least I was paid for my time, thanks to the generous people at WEMED.

At the meeting, we learned more about the MIBG therapy and I will tell you that it truly sucks.  We, as the caregivers, can only spend about 30 minutes per day at Cole’s bedside due to his becoming highly radioactive.  There will be a small mirror that will allow us to see him, and for him to see us.  Fortunately Cole is all about the adventure so the idea of a mirror is awesome to him.  For me it is another sucky thing to have to put my son through.  Fortunately I have a great support system, and the AZ Bakers are being mobilized and spreadsheeted.

**Another randomization.  Watching the NBA playoffs, I can’t help but find that the two teams that I want to see win are the Lakers and the Celtics.  This bothers me because I kind of hate these two teams.  The Lakers have one of the best players ever, but he is a total ass.  They have a lazy punk for a center who, when he shows up, is unstoppable, and they have a truly crazy person.  The Celtics have one of the best assist men that I have ever seen play.  They have one of the best pure shooters that I have ever seen play.  But they have Kevin Garnett.  I want so bad to hate both of these teams, and I want to root for the Grizzles or the Thunder, but I can’t.**

It looks like we are a go for UCSF on or about June 14th.  He will probably check in to his luxury suite on the 13th, and then on the 14th, he will obtain his super powers.  If you want to know more about  it, then you will just have to read the comic (which will be on sale soon).

Before I go, I want to make two announcements.  First off, JULIA IS ENGAGED TO BE MARRIED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! TO A BOY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Second, Julia’s...nay, my new soon to be brother in law is already stepping up to the plate.  He is giving a free seminar(?) or class(?) (not sure the exact format) about internet security.  Now, please understand that I am not trying to make fun of what he does.  I just truly don’t understand it.  I know that he is something similar to Robert Redford from Sneakers (Don’t look, listen) and that if you mess with his new family, he will hack yo ass….er something.  No, really I don’t understand it.  It has something nerdy to do with computers, and believe it or not, I am the cool one in the family.

In all seriousness (no really I promise this time) check out the link for what he is doing.  If you  follow his instructions and make the donation to Cole through this blog and put in the magic password, you will be able to receive a piece of his expertise.  http://www.securityaegis.com/hacking-cancer-please-spread-the-word/

For now please raise your glasses and toast Cole, deadly from beyond the arc.

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